Rare Syndrome Found! A 30 Year Old UK Woman Unable To Urinate For 14 Months

A woman named Elle Adams in the united kingdom was unable to urinate for 14 months. She has been diagnosed with a rare condition( fowler’s syndrome) that completely changed her life.

In October 2020, a 30-year-old woman, Elle Adams discovered she couldn’t urinate. No matter how much fluid she drank, she was unable to pee even though she felt like doing it.

She mentioned, “I was extremely healthy, and had no other problems. I woke up one day and wasn’t able to pee”. Ms Adams said, “I was at breaking point. My life had completely changed. I wasn’t able to complete a simple task like going to the toilet.”

The Treatment

Ms Adams went to the emergency room at St. Thomas Hospital in London, and after explaining her symptoms, she was told she had one litre of urine in her bladder. In most cases, the urinary bladder can hold up to 500ml of urine in women and 700ml in men.

The doctor gave her an emergency catheter-a tube passed into the bladder to drain urine. However, her problems weren’t instantly fixed. She was given the option to take the catheter out and try to go to the bathroom or go home and come back to the hospital for re-evaluation in three weeks. After visiting the urology centre a week later, Ms Adams was then taught how to self-catheter and was sent home.      

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Content Creator shares a post on Instagram

“A doctor that day told me I was just anxious and if I went away and did some yoga and wellness I’d probably be fine,” Ms Adams wrote on Instagram. 

 Meanwhile, the 30-year-old content creator from east London continued to use the device to urinate for more than a year. After many tests, she was diagnosed with Fowler’s syndrome and was warned she may have to urinate using a catheter for the rest of her life. 

What is Fowler’s Syndrome?

Fowler’s syndrome is the inability to empty the bladder. The rare condition mainly affects young women. Its cause is unknown of this condition. 

“I was told how I was likely suffering from Fowler’s. I was talked through the minimal treatment options – we did try medication but it just made no difference,” Ms Adams said.

The content creator was told her only option left was to go through Sacral Nerve Stimulation.

SNS (Sacral Nerve Stimulation )

It is a treatment that can help with bladder and bowel issues. The procedure, which would act as a pacemaker for the bladder, delivers stimulation to the nerves through a thin temporary wire inserted near the sacral nerves near the tailbone, which controls the bladder and bowel. It stimulates the bowel muscles to get them to work normally.

Ms Adam’s recent condition

“I am doing well, I am on the more well side of Fowler’s. Grateful for the difference, I am feeling better than before. I couldn’t have imagined how I was going on before, it was so draining, and it took up my life it was becoming hard to imagine that would have been the case forever. Now I can pee on my own, and I have cut down on my self-catheterization a lot. It is still difficult, but it is much better than it was.”